Dear Special Parent,

I deeply understand the myriad of challenges you face in planning for your child's future. One critical aspect of this planning often overlooked is Supplemental Security Income (SSI). SSI is a lifeline for many families with disabled children, providing financial assistance and access to essential services. To help you navigate this complex terrain, here are five insights that every special parent should know:

Understanding SSI Eligibility:
SSI is a needs-based program administered by the Social Security Administration (SSA). To qualify, your child must meet the SSA's definition of disability for children, which includes a condition that causes severe functional limitations expected to last at least 12 months or result in death. Additionally, income and resources must fall within certain limits.

Starting the Application Process Early:
The application process for SSI can be lengthy and complex, often requiring extensive documentation and medical evidence. Start the process as early as possible to ensure your child receives the support they need when they reach adulthood. You can apply for SSI for your child as early as their 18th birthday, or even earlier if your family’s income and resources fall within limits.

Understanding the Impact on Medicaid Benefits:
SSI eligibility often comes with access to Medicaid, which can be invaluable for covering healthcare costs not covered by private insurance.

Utilizing ABLE Accounts:
Achieving a Better Life Experience (ABLE) accounts are tax-advantaged savings accounts designed specifically for individuals with disabilities. Funds in an ABLE account do not count towards the resource limit for SSI eligibility, making them a valuable tool for saving without jeopardizing benefits.

Planning for the Future:
SSI benefits provide essential financial support, but they may not be enough to cover all of your child's needs throughout their lifetime. Consider establishing a Special Needs Trust (SNT) to supplement SSI benefits and ensure your child's long-term financial security. An SNT allows you to leave assets for your child without jeopardizing their eligibility for government benefits.

In conclusion, navigating the world of SSI can be overwhelming, but with the right knowledge and support, you can ensure your child receives the resources they need to thrive. By understanding eligibility criteria, starting the application process early, leveraging available resources like ABLE accounts, and planning for the future with tools like Special Needs Trusts, you can lay the groundwork for your child's financial security and independence.

Dr. Kimberly

Dr. Kimberly Idoko
Certified Special Parent Coach

Dr. Kimberly is the mother and fierce advocate of Aiden and Lexi; Lexi is developmentally disabled by Rett Syndrome. Dr. Kimberly is a board-certified neurologist in clinical practice for more than 15 years; she is also a children’s rights attorney — the former director of healthcare advocacy at a Los Angeles-based legal agency. She is Yale College, Penn Medicine, Columbia Business, and Stanford Law trained.
Dr. Kimberly smiling

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