Autism
The Diagnosis
Dear Special Parent,
Receiving an autism diagnosis for your child can be a complex and emotional journey. I deeply understand the whirlwind of feelings that can accompany this news. Here, I’ll explore what autism means, how it’s diagnosed, and constructive steps you can take following your child’s diagnosis.
What Does an Autism Diagnosis Mean?
Autism Spectrum Disorder (ASD) is a developmental disorder that affects communication and behavior. Although autism can be diagnosed at any age, it is said to be a “developmental disorder” because symptoms generally appear in the first two years of life. Understanding that autism is a spectrum is crucial; it affects individuals differently and to varying degrees. This means no two children with autism are the same, and thus, each child’s needs and abilities will be unique.
How is Autism Diagnosed?
The process of diagnosing autism is often multifaceted and involves several stages:
1. Developmental Screening: During regular well-child doctor visits, developmental screenings are recommended at specific ages. If these screenings indicate potential concerns, a more comprehensive evaluation is suggested.
2. Comprehensive Diagnostic Evaluation: This may include a thorough neurological assessment, genetic testing, and consultations with psychologists or psychiatrists. This evaluation looks at the child’s behavior and development in detail and compared to children of the same age.
3. Behavioral Evaluation: Tools like the Autism Diagnostic Observation Schedule (ADOS) are often used. This involves a series of structured and semi-structured tasks that measure social interaction, communication, and play.
What Comes After a Diagnosis
Receiving an autism diagnosis for your child can evoke a mix of emotions, from relief to apprehension. Here are some initial steps to take following a diagnosis:
1. Educate Yourself: exploring the nuances of autism will better equip you to confidently support your child. Seek reliable sources and perhaps consult specialists who can provide deeper insights into your child’s specific condition.
2. Early Intervention is Key: Engage in early intervention services, which can include speech therapy, occupational therapy, and applied behavior analysis (ABA). Early and tailored intervention can significantly impact your child’s development.
3. Set up Support Systems: Lean on family and friends who can empathize, and connect with support groups, both locally and online for emotional support, practical advice, and resources.
Empathy & Understanding On Your Journey
As you navigate this path, remember that it’s okay to feel overwhelmed at times. Keep learning, keep questioning, and keep seeking the best tools to support your child’s growth and happiness. Autism is complex, and managing it doesn’t come with a clear set of instructions. Embrace the journey with empathy, not just for your child, but also for yourself. Your efforts and love make all the difference.
Dr. Kimberly
Dr. Kimberly Idoko
Certified Special Parent Coach
Dr. Kimberly is the mother and fierce advocate of Aiden and Lexi; Lexi is developmentally disabled by Rett Syndrome. Dr. Kimberly is a board-certified neurologist in clinical practice for more than 15 years; she is also a children’s rights attorney — the former director of healthcare advocacy at a Los Angeles-based legal agency. She is Yale College, Penn Medicine, Columbia Business, and Stanford Law trained.
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